Where to from here

This morning my husband and I had some honest conversations about what to do with this platform that has been created.

My story.
This unfortunately might be just like your story.
In 2014 in New Zealand Complex Regional Pain Syndrome is still so unexplained, unexplored, anonymous, un-heard of?
Why don't  more GP's know about this?
Where is our Foundation?
I hear great things about so many charities, foundations, societies, ribbon days etc - But where is ours?

Who is there when NO one else gets it?
How many people have to go through whirl winds of unknown systems, resources not being made available easily?

So where to from here........

Watch This Space :)